![]() The statistics say that 25% of people under 40 will have cancer if they have this presentation and 90% of people over 40. ![]() Know this post is long but really wanted to put something out there that all enlarged lymph nodes above the collarbone aren't automatically cancer. Lymph nodes are reactive! Totally benign! Overjoyed and am discharged. Results in this morning, Monday 20th May. Am called that morning, results not back yet. Results of biopsy due on Monday 13th May. Get examined, ultrasound and then discharged. When I come out of recovery, surgeon says he wants to send me to Breast Care because of an inflamed axillary lymph node (I freak, my Mum had breast cancer). Biggest node is 3 cm.Įxcisional biopsy the next day (Thurs- head is in a spin).Īs I'm being wheeled in to theatre, am told by ENT surgeon that FNA came back reactive (obv I'm worried about it being a false negative- online we're told that false negatives are common- ACTUALLY THEY'RE NOT REALLY- Reed Sternberg cells too big to get through needle- NOT TRUE, they're just quite sparse in most hodgkins lymph nodes). Shows enlarged supraclavicular area- reactive and inflamed, but don't know to what. Have neck and chest CT with contrast next day at 9 am. Lots of looks happening between doctors and no, I'm not being paranoid! Gets senior pathologist to do FNA following Monday (again mixed opinions, not worth doing?). ![]() I'm told this is a good sign.then every single doctor following this says that bloods don't mean anything until you have advanced disease. Has me come in day later for extensive bloods (12 vials), the results of which are completely normal. GP signs me off for week (which makes me feel sick). Ultrasound shows several enlarged MATTED left supraclavicular nodes, the biggest being Virchow's Node at 3.6 cm. Think that it might have been MRSA so go back to different GP in the hopes of getting antibiotics. What the hell does that mean?įew weeks went by, lymph node still enlarged. GP rang following day, sounded surprised that I wasn't in hospital and said results were 'encouraging'. Waited patiently in A&E, was finally seen. Told me to go straight to A&E, pack an overnight bag and that they would know quite soon why the lymph node was up. He dismissed this as being unrelated to the lymph node. ![]() I went to the GP on Wednesday 13th March, explaining that I'd had quite a severe staph nose infection and now had a virus. I instantly knew that this was not good and I would soon get used to the faces of medical professionals falling as soon as they saw it. Not just any average lump- A LEFT SUPRACLAVICULAR LYMPH NODE that literally popped out of nowhere. It started on Tuesday 12th March of this year when I found a lump on the left side of my neck. I feel for every person who has to deal with this disease as both my parents have. My story has a happy ending and believe me when I say that I know how fortunate I am. This has such a detrimental effect on the scared/anxious person looking for support and information as the internet gives such a skewed viewpoint, leading us to believe that there are only bad news stories out there. I've literally spent the last 2 months googling lymphoma/supraclavicular nodes/statistics/nodal size etc etc and I'm surprised that I haven't gone insane! One thing I continually noticed was that very rarely a person, who was lucky enough to receive good news, posted a positive update. I'm a 33 year old female secondary school teacher who lives in Dublin, Ireland. Just thought I'd post for the first time today as I come to the end of one of the most worrisome times in my life (and believe me I've had many!).
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